Posts belonging to Category ALS Community News
Posted by Site Administrator on June 4, 2013
As the result of a major breakthrough by researchers at Northwestern University’s School of Medicine, researchers studying amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig’s Disease, are now one step closer to unlocking the nature of ALS. The recent discovery, which for the first time identified a gene both in motor neurons in the brain and spinal cord affected by ALS, offers a glimpse of hope to those who currently suffer from the deadly disease which rapidly breaks down their bodies while leaving mental capacity intact.
Categories: 501(c)(3) Non-Profit, ALS Community News, ALS News, Research News
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Tags: ALS, ALS community, ALS diagnosis, ALS diagnostics, ALS research, ALS research funding, ALS treatments, amyotrophic lateral sclerosis, Bob Stehlin, Les Turner ALS Foundation, Lou Gehrig's disease, National Institutes of Health (NIH), Northwestern University's School of Medicine, PALS, RASCALS Foundation, Robert A. Stehlin Campaign for ALS, St.Louis RASCALS ALS Lou Gehrig's Disease amotrophic lateral sclerosis, Terre Constantine, Wenske Foundation
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Posted by Site Administrator on May 16, 2013
This spirit of volunteerism also extends to our leadership. We have been fortunate to have some very bright and energetic people step forward to help plan how we might best serve the ALS community. With that in mind, we proudly announce that Melissa Marr has accepted the position of Marketing Director on the RASCALS Foundation Board of Directors.
Categories: 501(c)(3) Non-Profit, ALS Community News, ALS News, RASCALS Foundation News
| Tags: 501(c)(3) ALS charity, ALS, ALS charity, ALS community, ALS research funding, amyotrophic lateral sclerosis, Bob Stehlin, InsideSTL.com, KFNS Sports Radio, Lou Gehrig's disease, Melissa Marr, PALS, RASCALS Foundation, Robert A. Stehlin Campaign for ALS, Southeast Missouri State University, St.Louis RASCALS ALS Lou Gehrig's Disease amotrophic lateral sclerosis
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Posted by Site Administrator on May 4, 2013
We are a 100% all-volunteer 501(c)(3) non-profit charity. No one takes a paycheck here and there are no administrative costs. That means 100% of all funds raised by the R.A.S.C.A.L.S. Foundation go directly to fighting ALS.
The money goes to fund promising treatment research and development. It helps with ALS family assistance, such as our annual Higher Education Scholarship program.
Categories: 501(c)(3) Non-Profit, ALS Community News, ALS Families, ALS News, Caretakers
| Tags: 501(c)(3) ALS charity, ALS, ALS Awareness Month, ALS charity, ALS community, ALS cure, ALS diagnosis, ALS donations, ALS funding, ALS medical care, ALS research, ALS research funding, ALS treatments, amyotrophic lateral sclerosis, Bob Stehlin, Lou Gehrig's disease, PALS, RASCALS Foundation, Robert A. Stehlin Campaign for ALS, St.Louis RASCALS ALS Lou Gehrig's Disease amotrophic lateral sclerosis
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Posted by Site Administrator on May 4, 2013
“That our cells and method of delivery are safe in ALS patients bodes very well for expanding to other indications. We expect to commence our FDA-approved Phase I trial in chronic spinal cord injury later this year using the same methodology. We want to thank the surgeons at Emory, who developed these techniques, as well as the patients and their families who have taken part in the trial.”
Categories: ALS Community News, ALS Families, ALS News, Clinical Trials, Research News, Treatments
| Tags: ALS, ALS Awareness Month, ALS cell therapy, ALS clinical trial, ALS community, ALS research, ALS research funding, ALS treatments, amyotrophic lateral sclerosis, Bob Stehlin, Intraspinal Stem Cell Transplantation in ALS, Karl Johe, Lou Gehrig's disease, Neuralstem Incorporated, NSI-566 Phase I trial ALS, PALS, RASCALS Foundation, Robert A. Stehlin Campaign for ALS, St.Louis RASCALS ALS Lou Gehrig's Disease amotrophic lateral sclerosis
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Posted by Site Administrator on April 30, 2013
April marks National Volunteer Month. This observance holds very special meaning for all of us here at the Robert A. Stehlin Campaign for ALS (R.A.S.C.A.L.S.). That’s because we are a 100% all-volunteer 501(c)(3) non-profit charity. There are no administrative costs.
That means no salaries, payments, or perks for anyone. Out-of-pocket expenses truly means out of our [...]
Categories: 501(c)(3) Non-Profit, ALS Community News, ALS Families, ALS News, RASCALS Foundation News, Treatments
| Tags: 501(c)(3) ALS charity, ALS, ALS Awareness Month, ALS community, ALS cure, ALS diagnosis, ALS diagnostics, ALS donations, ALS funding, ALS medical care, ALS research, ALS research funding, ALS treatments, ALS volunteers, amyotrophic lateral sclerosis, Bob Stehlin, Lou Gehrig's disease, PALS, RASCALS Foundation, Robert A. Stehlin Campaign for ALS, St.Louis RASCALS ALS Lou Gehrig's Disease amotrophic lateral sclerosis
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Posted by Site Administrator on April 12, 2013
Antisense Oligonucleotides May be Feasible ALS Therapeutic Strategy
BOSTON, Massachusetts, March 29, 2013 — Published online today in Lancet Neurology, an SOD1-related familial ALS trial under the direction of NEALS researchers Timothy Miller, MD, PhD (Washington University School of Medicine) and Merit Cudkowicz (Massachusetts General Hospital) indicates that antisense oligonucleotide delivery to the central nervous system may [...]
Categories: ALS Community News, ALS News, Clinical Trials, Research News, Treatments
| Tags: ALS, ALS community, ALS treatments, amyotrophic lateral sclerosis, antisense oligonucleotide, Bob Stehlin, cerebrospinal fluid (CSF) ALS, ISIS 333611, Isis Pharmaceuticals, Johns Hopkins University, Lou Gehrig's disease, Massachusetts General Hospital, Merit Cudkowicz, Methodist Neurological Institute, MGH Neurological Clinical Research Institute (NCRI), Northeast ALS Consortium (NEALS), PALS, RASCALS Foundation, RNA ALS, Robert A. Stehlin Campaign for ALS, SOD-1, St.Louis RASCALS ALS Lou Gehrig's Disease amotrophic lateral sclerosis, Timothy Miller, Washington University in St. Louis, Washington University School of Medicine
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Posted by Site Administrator on March 28, 2013
TORONTO, Canada, March 20, 2013 /CNW/ — Amorfix Life Sciences announced today that it has furthered the development of the first effective blood test to diagnose amyotrophic lateral sclerosis (ALS) by cloning ultra-high affinity antibodies that detect a misfolded version of the enzyme superoxide dismutase 1 (SOD1), which has been implicated in the development of [...]
Categories: ALS Community News, ALS News, Research News, Treatments
| Tags: ALS, ALS community, ALS diagnosis, ALS diagnostics, ALS research, ALS research funding, ALS therapeutic antibodies, ALS treatments, ALS vaccines, Amorfix Life Sciences, amyotrophic lateral sclerosis, blood test ALS, Bob Stehlin, Dr. Neil Cashman, Dr. Robert Gundel, PALS, Pan-Provincial Vaccine Enterprise Inc. (PREVENT), RASCALS Foundation, Robert A. Stehlin Campaign for ALS, SOD1, SOD1 ALS, St.Louis RASCALS ALS Lou Gehrig's Disease amotrophic lateral sclerosis
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Posted by Site Administrator on March 25, 2013
“This innovative diaphragm pacing system is an exciting development in the treatment of ALS. It has the potential to improve and extend the lives of hundreds of ALS patients. It is thrilling that our BWH team is able to bring this new treatment to ALS patients in New England,” said Dr. Ducko.
Categories: ALS Community News, ALS Families, ALS News, Research News, Technology
| Tags: ALS, ALS community, ALS medical care, ALS research, amyotrophic lateral sclerosis, Bob Stehlin, Brigham and Women’s Hospital (BWH), diaphragm pacing system, Dr. Christopher Ducko, PALS, RASCALS Foundation, Robert A. Stehlin Campaign for ALS, Scott Murphy, St.Louis RASCALS ALS Lou Gehrig's Disease amotrophic lateral sclerosis, Stem cells ALS
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Posted by Site Administrator on March 25, 2013
At a time when scientists are making rapid gains in the genetic roots of many diseases, Mr. Doctoroff, a former deputy mayor and private equity investor, is working with Mayor Michael R. Bloomberg and a private equity director, David M. Rubenstein, to put together a $25 million package of donations to support research to try to cure this rare and usually fatal degenerative neurological illness.
Categories: ALS Community News, ALS News, Research News
| Tags: A.L.S. Association, ALS, ALS community, ALS cure, ALS medical care, ALS research, ALS research funding, ALS treatments, amyotrophic lateral sclerosis, Bloomberg L.P., Bloomberg Philanthropies, Bob Stehlin, C9ORF72, Carlyle Group, Columbia University, Daniel L. Doctoroff, David M. Rubenstein, Franklin & Marshall College, Johns Hopkins, Lou Gehrig's disease, Martin Doctoroff, Mayor Michael R. Bloomberg, PALS, Patricia E. Harris, RASCALS Foundation, Robert A. Stehlin Campaign for ALS, St.Louis RASCALS ALS Lou Gehrig's Disease amotrophic lateral sclerosis, Target A.L.S.
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Posted by Site Administrator on March 4, 2013
Long-time fans of the Allman Brothers were saddened to learn Feb. 27 that former guitarist Dan Toler died at the age of 65. Dan and his brother David “Frankie” Toler, a drummer, were involved with a number of bands over the years, including the Allman Brothers from 1979 to 1982. Contact Music shared the details [...]
Categories: ALS Community News, ALS Families, ALS News
| Tags: Allman Brothers, ALS, ALS community, ALS donations, ALS education, ALS medical care, ALS news, amyotrophic lateral sclerosis, Dan Toler, Dan Toler ALS, Dangerous Dan Toler, David “Frankie” Toler, Dickey Betts & Great Southern, Lou Gehrig's disease, PALS, RASCALS Foundation, Robert A. Stehlin Campaign for ALS, St.Louis RASCALS ALS Lou Gehrig's Disease amotrophic lateral sclerosis, The Gregg Allman Band, The Renegades of Southern Rock
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