Posts belonging to Category Caretakers

ALS Takes a Deep Breath with Diaphragmatic Pacing System

Traditionally, ALS patients like Mary would use a BiPAP machine to help her breathe. She’d wear a mask, tethered to a ventilator. It would force air into Mary’s lungs. Now, Mary is the first ALS patient at The Ohio State University to be implanted with a diaphragmatic pacing system to help her strengthen her muscles.

New Device Delays Ventilator Need for Some ALS Patients (Op-Ed)

For patients with amyotrophic lateral sclerosis (ALS), the simple act of breathing is often a tough thing to do. Now, these patients have new hope, as a device has been approved by the U.S. Food and Drug Administration (FDA) that may help patients to breathe more easily without a ventilator.

Diaphragm Pacing System Benefits Patients With ALS

Respiratory failure is one of the major complications associated with amyotrophic lateral sclerosis (ALS). The quest for alternative approaches for treating respiratory failure has led to the study, and subsequent FDA approval, of diaphragm pacing for use in ALS patients.

Thank You For Helping Us Take Another Step Forward in the Fight Against ALS

My heartfelt thanks goes out to all of you who helped to make the R.A.S.C.A.L.S. Second Annual 5K Walk/Run a resounding success.

Macomb County Woman Pens Book about Father’s Struggle with ALS

Dr. Julie A. Rouse’s father, Jerome “Jerry” Kowalski, was diagnosed with Amyotrophic Lateral Sclerosis in 2003. She said she struggled to find any information to help her understand the disease or what her family would face as it progressed.

November is National Caregivers Month

A caregiver is a person who gives of oneself, tirelessly, endlessly, with love and support to another who is struggling and suffering.
The RASCALS Foundation salutes all the world’s selfless caregivers. My personal salute is to my dear wife Laura for her care and comfort she provides to me every minute of the day. — RASCALS Founder, Robert A. Stehlin

Last Day to Pre-Register for the RASCALS Foundation 5K Walk/Run in Tower Grove Park, November 2nd

Please join the Robert A. Stehlin Campaign for ALS (RASCALS) to “Fight ALS One Step At A Time”
on Saturday, Nov. 2nd, Tower Grove Park.

Last Days to Pre-Register for the RASCALS Foundation 5K Walk/Run in Tower Grove Park, November 2nd

Please join the Robert A. Stehlin Campaign for ALS (RASCALS) to “Fight ALS One Step At A Time”
on Saturday, Nov. 2nd, Tower Grove Park.

This is no ordinary 5K walk in the park. This is a race against time.

While a lot of important things are happening in ALS research, we are still in desperate need of an effective treatment for Lou Gehrig’s disease. You can help with the critical next steps by coming out to Tower Grove Park on November 2nd for our annual 5K Walk/Run to help families fighting ALS.

A Long Road to Medicaid Approval for MIssouri Family Fighting ALS

After five months, doctors still couldn’t explain Kathy’s symptoms, but the couple had been in touch with a doctor friend in Jefferson City who urged them to get Kathy to a doctor in St. Louis.

The couple moved back to Franklin County in May 2012 to be nearer to Kathy’s doctors in St. Louis, but she still didn’t have a diagnosis, and Kathy’s health and ability to care for herself was deteriorating fast.

In July 2012, she was able to walk, said Dave, but in September, when she began seeing Dr. Timothy Miller, a neurologist at Washington University and Barnes-Jewish Hospital, she needed a walker to get around. By October, she was in a wheelchair.