For RASCALS, There’s Nothing Trivial About This Trivia Fundraiser Night

The family and friends of Robert A. (Bob) Stehlin, founder of the RASCALS Foundation, are hosting a Trivia Night, Saturday, September 6, 2014, in an effort to raise monies to assist his family with the financial burdens that ALS has placed on them over the past 5 years. Julie Tristan will be the Emcee for the evening.

ALS Awareness Facts: Day 30

Fact: There are people in whom ALS has stopped progressing and a small number of people in whom the symptoms of ALS reversed. Hopefully one day soon every patient’s symptoms will be reversed, and ALS itself erased from the planet. But we need your help.

ALS Awareness Facts: Day 29

Greater than 50% of all persons with living with ALS survive more than 3 years after diagnosis.

ALS Awareness Facts: Day 27

Clearly the ALS community still has a long way to go to finding a cure, or even effective treatment options. And that’s also why fundraising is such an important part of what we do here at the RASCALS Foundation.

ALS Awareness Facts: Day 26

Physical therapy and special equipment can enhance patients’ independence and safety throughout the course of ALS.

ALS Awareness Facts: Day 25

Riluzole, the first treatment to alter the course of ALS, was approved by the FDA in late 1995. This antiglutamate drug was shown scientifically to prolong the life of persons with ALS by at least a few months.

ALS Awareness Facts: Day 24

Lou Gehrig’s disease eventually affects total body movement, as well as speech, swallowing and breathing. ALS ultimately results in a total body paralysis, inability to speak, inability to eat or drink by mouth, and inability to breathe unassisted. Finally there is simply an inability to breathe.

ALS Awareness Facts: Day 20

It’s impossible to detail all the benefits of private insurance providers, but Social Security assistance is something every ALS family should investigate.

ALS Awareness Facts: Day 19

Although the life expectancy of an ALS patient averages about 2-5 years from the time of diagnosis, this disease is variable and many people live with quality for 5 years and more.

ALS Awareness Facts: Day 18

The financial burdens to families of persons with ALS is exceedingly high. There can be significant costs for medical care, equipment, and home health caregiving later as the disease progresses. In the advanced stages, care can cost up to $200,000 a year. This does not include any alterations made to the patient family’s home to accommodate a wheel chair, or a special needs van essential for patient transportation.