The family and friends of Robert A. (Bob) Stehlin, founder of the RASCALS Foundation, are hosting a Trivia Night, Saturday, September 6, 2014, in an effort to raise monies to assist his family with the financial burdens that ALS has placed on them over the past 5 years. Julie Tristan will be the Emcee for the evening.
CBS Sports Radio 920 and InsideSTL invite you to be their guest for their first Annual Charity Poker Classic presented by Miller Fortune at Lucas Park Grille on June 18th @ 6PM
Join us for food & drinks from Lucas Park and Miller Fortune, plus a fabulous night of poker and celebrities to benefit a [...]
Greater than 50% of all persons with living with ALS survive more than 3 years after diagnosis.
Clearly the ALS community still has a long way to go to finding a cure, or even effective treatment options. And that’s also why fundraising is such an important part of what we do here at the RASCALS Foundation.
Lou Gehrig’s disease eventually affects total body movement, as well as speech, swallowing and breathing. ALS ultimately results in a total body paralysis, inability to speak, inability to eat or drink by mouth, and inability to breathe unassisted. Finally there is simply an inability to breathe.
In some circles, motor neuron disease is used interchangeably with Lou Gehrig’s disease, however ALS is only one recognized subtype of MND.
It’s impossible to detail all the benefits of private insurance providers, but Social Security assistance is something every ALS family should investigate.
Although the life expectancy of an ALS patient averages about 2-5 years from the time of diagnosis, this disease is variable and many people live with quality for 5 years and more.
The financial burdens to families of persons with ALS is exceedingly high. There can be significant costs for medical care, equipment, and home health caregiving later as the disease progresses. In the advanced stages, care can cost up to $200,000 a year. This does not include any alterations made to the patient family’s home to accommodate a wheel chair, or a special needs van essential for patient transportation.
Fact: The relationship between ALS and head trauma is still being investigated
Recent studies suggest that there are other disorders brought on by concussion-like trauma that can erode the central nervous system in similar ways as ALS.
The studies involve former football players, boxers, and military veterans who have received diagnoses of ALS at rates significantly higher [...]